“Pain is just is”

I wanted to write about “pain” for some time now, both physical and emotional pain, but it was not the right time for it. I wasn’t inspired or perhaps I didn’t have enough experience of pain to write about it It is somewhat odd for me to say this aloud as I firmly believed until […]

Day of reckoning

We have a virtual family. The neuroblastoma parents. A closed group on Facebook with over 3000 members. All sharing the same predicament. Suffering from the same ordeal. Asking questions, trying to learn from each other’s experiences, getting advice; sometimes just venting out their frustrations with the “normals”. These are some of the things we, as […]

One day at a time

Imagine you’re an obsessive compulsive person. Dedicated, disciplined, somewhat rigid, disturbingly perfectionist, with a huge aversion to uncertainty. Of all kinds. You hate uncertainty in your personal life, in your work life, everywhere, under all conditions. Life has always been particularly difficult for you since life is, well, full of uncertainties! Worse, you are aware […]

The burden of human suffering

Don’t try. You cannot even begin to understand. The “overwhelming burden of human suffering – disease, mutilation, grief, age and death” that Benedict Anderson so aptly described, the inability to come up with a straight answer to the simple yet agonizing question “why him?” are not things that could be grasped vicariously. For us, however, […]